Friday, January 31, 2014

Two days post op and shooting hoops

Bailey felt good enough to go out and shoot some baskets tonight. Crazy kid!

Baileys legs

Nerve block

This is what the nerve blocks look like that he has going into both legs. There is a small bag of medicine attached to each tube.  He will have these in place until Saturday

Home to a non wheelchair friendly house

On Thursday ( one day post op ) I called in the morning and the nurse said that Bailey was doing very well.  His pain was under control and needed very little oxygen during the night.  During the day, the physical therapist came through and helped him learn how to transfer from his wheel chair to bed and back and forth. 

The next thing I know, I got a text from Bailey telling me that they were probably going to let him go home that day.    I went up to Primary Children's after work to see what was going on, and they had his discharge papers and everything all ready to go.

Bailey still has is "On Q" Balls in his legs that are his nerve blocks.  Those will come out Saturday afternoon.   He is to be completely non weight bearing on his legs for 5-6 weeks.   We will see Dr. Stotts for a follow up in 5 weeks.

The steps leading up to our front door were kind of rough to get the wheel chair up.  I took the wheelie bars off so that should help next time.   Transfering in and out of the car was tough.  I actually had to pick him up to put him in and take him out.    The halls in the house are narrow so take some tough maneuvering to navigate.   We also don't have a wheel chair friendly bathroom, so transferring to the toilet is very difficult.  I may have to look into another option to get us by for the next month and a half.

Bailey is still on scheduled medication every 3 hours or so.   They want to keep one step ahead of the pain.  So far, he has not really complained about the pain since being home. 

I had originally thought that he would be able to return to school next week, but after talking to the nurse yesterday, it looks like he will stay home next week too.   So, I need to get notes and books from teachers so he can catch up with homework assignments and tests.

I feel blessed that things went as well as they did. But, I realize that we still have quite a ways to go.  We appreciate your prayers and support. 

Thursday, January 30, 2014

Day 2

I have talked to Bailey and his nurse this morning.  He is doing really well.  He still had to be on a little oxygen while he was sleeping, but seems good when he is awake.  His pain level is at a 3 or a 4 which is great.  They physical therapist has been in and has worked with him on getting in and out of his wheel chair and his bed.    They still need to work with him some today, but they say that there is a chance that he may be able to go home tonight.   Im sure he would be more comfortable at home, but accessibility might be an issue.   He is in good spirits and is trying to eat some bacon and pancakes for breakfast.  When he get's his appetite back I will know we are headed in the right direction.  

We appreciate everyone's support and kind wishes.

Wednesday, January 29, 2014

post op and up to his room

So Bailey is out of surgery.  I guess he was in quite a bit of pain so they gave his some phentonol (sp).  That suppressed his breathing so they had to give him some oxygen to help him out.   He was coming in and out of the medicine.  When he was awake he was doing fine.  He drank some Gatorade and part of a slushy.   They moved him up to his room in the surgical unit.  It is nice, he has a room to himself.  He is still on oxygen, and is sleeping off the drugs.   When he wakes up he can start to eat a little bit.  They want to start him on oral pain meds instead of IV.   I will have more to say once he is more awake and can talk.   So far Primary Children's has been awesome.  

Visit with Doctor

That was quick.    The doctor just came in.  Said that they surgery went great.  Said his bones are real strong.  They were able to get things lined up perfectly from his knees down.  There is still a slight rotation in his thigh, but he feels real good about the procedure.  They put a split splint on him to allow for swelling in his leg. When he leaves, they will cat him up.  completely.  They are currently putting in nerve blocks that will block the pain in his lower legs.   He will have plates and pins on the front of his shins.  They are surgical grade steel so they could be there for the rest of his life if he wanted them to.   So, now Im just waiting to get to go see my boy.